Episode 112

KEEP F’N GOING (KFG) With HOWARD BROWN

Episode Summary – 

LIFE IS SIMPLE - BE KIND TO YOUR SELF AND OTHERS! In Episode 112 of the Shining Brightly Podcast show (links in the comments), titled KEEP F’N GOING (KFG), I AM PODCASTING FROM MY HOSPITAL BED WHILE HI DOSE CHEMOTHRAPY IS ATTACKING MYELOID LEUKEMIA (not sure this has been done before but I need to focus on getting to a lifesaving donor-based stem cell transplant). This is my 3rd major cancer mountain I have had to climb in my lifetime. I WILL BE PLACING THE PODCAST ON HIATUS AFTER 112 AMAZINGLY INSPIRING SHOWS AND OVER 275,000+ DOWNLOADS. 

Peeps ask what they can do for me in my time of need. Here are my requests #grateful

1.) PLEASE DONATE to my go fund me if you can and PLEASE SHARE with others - https://www.gofundme.com/f/hbstrong-support-howard-brown-3rd-cancer-aml

2.) Please send healing prayers and hugs – I am receiving 100s and 100s daily from around the world

3.) CONSIDER – a donation of blood and or platelets WHERE YOU LIVE. I have had 10 blood and platelet transfusions and will NEED more transfusions DAILY but so do many others.

4.) THIS IS NEW ++++

CONSIDER – a cheek swab from Gift of Life https://www.giftoflife.org/ bone marrow registry. They can send a kit to your home or swab at a cancer hospital or BE the Match - https://www.nmdp.org/ is another great registry.

5.) Be KIND to others - random acts of kinds make the day better for you and the recipient!

6.) Hug your friends and family for NO REASON

7.) KEEP SHINING BRIGHTLY ALWAYS

Much luv

HB STRONG

Mentioned Resources – 

https://tinyurl.com/BuyShiningBrightly

About the Host –  

Howard Brown, Mr. Shining Brightly

Howard Brown is an author, Silicon Valley entrepreneur, interfaith peacemaker, two-time stage IV cancer survivor and healthcare advocate. For more than three decades, Howard’s business innovations, leadership principles, mentoring and his resilience in beating cancer against long odds have made him a sought-after speaker and consultant for businesses, nonprofits, congregations, and community groups. In his business career, Howard was a pioneer in helping to launch a series of technology startups before he co-founded two social networks that were the first to connect religious communities around the world. He served his alma matter —Babson College, ranked by US News as the nation’s top college for entrepreneurship—as a trustee and president of Babson’s worldwide alumni network. His hard-earned wisdom about resilience after beating cancer twice has led him to become a nationally known patient advocate and “cancer whisperer” to many families. Visit Howard at ShiningBrightly.com to learn more about his ongoing work and contact him. Through that website, you also will find resources to help you shine brightly in your own corner of the world.


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#keep #going #resilience #hope #cancer #sucks #author #bestseller #tvhost #survivorship #coaching #gofundme #motivation #education #inspiration #podcast #listen #download #review #share #shiningbrightly

Transcript
Howard Brown:

Hello. It's Howard Brown. It's the Shining Brightly

Howard Brown:

Show. I got some big news for you, and not all of it's very

Howard Brown:

pleasant or good, but I need to share with you. First of all, I

Howard Brown:

want to thank you. This has been an amazing run of 112 shows,

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raving fans, 275,000 plus downloads, and just listening to

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the most interesting, amazing people and their stories of

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human resolve, what they've overcome, what they've learned,

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and how they lift themselves and lift up others. And it's quite

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simple, kindness, kindness matters. Kindness for yourself,

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kindness for others. That's that's the starting point, and

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that's how you build a resilient life with hope. So let me dig

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right in and share the news. Unfortunately, I've been

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diagnosed with Acute Myeloid Leukemia. It's cancer of the

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bone marrow. It is because of all the other chemotherapies and

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radiations and side effects I've had through the years. Now I

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don't like to be defined by cancer, but it's been such a big

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part of my life. It's who I am. And now I've got a third

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mountain cancer, mountain decline. And so let me take a

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step back for you bring you up to speed. So when I was 23 and a

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half years old, I was diagnosed with stage four, not Hodgkin's

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lymphoma, and I was told that I had six months to live, and I

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was failing a ton of chemotherapies. And the only

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good news I got in February of 1990 remember, this is analog,

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no internet, no computers, no cell phones. This is really an

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analog time. But my sister, my twin, CJ brown genres, and she

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was an exact what's called HLA match 10 for 10. And slowly but

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surely, they loaded me up with chemotherapy and got me into a

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very short remission, and I got a bone marrow transplant. That's

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what it was called. It's now called a stem cell transplant,

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may 24 of 1990 and that little bag of life gave me 26 years to

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put Humpty Dumpty back together again. I did a clinical trial

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that strengthened my natural killer cells, and I moved from

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Massachusetts to California and put my life back together,

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emotionally, physically, financially, with my career and

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in relationship, and so I started to get back to work

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again. I started to heal emotionally from all the trauma

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at such a young age and build up my my resistance, because just

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going to work and working a full day took time, and I got back on

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the basketball court and into the gym, walking on the beach,

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and my career was starting to get back, but together and I met

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my wife, Lisa, and we had a fairy tale Hollywood Wedding at

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shutters at the beach in July of 24th of 2000 and I'm sorry, of

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1994 and became a Big Brother, did a lot of community service

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and really got my life back. And so miracle number one, my twin

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sisters, bone marrow. Miracle number two, before I did a drop

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of chemotherapy, I ended up going to the cryogenic center,

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cryo what sperm bank, and I delivered a sample, even though

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they told me I was going to die. And it was one of the best

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decisions that Dr Eric Rubin told me about, because 11 years

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later, frozen sperm became our beautiful miracle girl, Chapter

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Six in my book, Emily, our frozen kidsickle. And what a

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blessing just to be able to become a father and and have

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just an amazing daughter to to basically live our lives out

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with. So I was working in Silicon Valley when that

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happened, and my twin sister says, I'm moving to Michigan.

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Well, Lisa's from Michigan. We have family there, and Emily

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could grow up with her cousins. My sister has three kids, and

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Marley, who's now 26 and twins that are going to be 23 soon,

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and Emily's 23 and then also cousins that were at that time,

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four and six years old. So we built a life back here. Been

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here for 19 and a half years, and I was basically running two

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platforms serving the world's largest social networks. It was

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called Planet Jewish, and then circle builder. So I was

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basically built an engine, an events engine to find out what's

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going on in Jewish communities around the US and Canada and

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even internationally. And you could do that basically on web

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one, oh, type of work, and find out what you wanted to do and

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get involved and volunteer or take a class or do a mommy and

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me so. And we process millions of events over the course of 17

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years. And we then started circle builder. Circle builder

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was for Christian builder, Catholic builder, Jewish

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builder, Muslim builder. Had new builder. And we built a whole

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different platform, Ruby on Rails, 1.0 and this is in 2006

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and rolled that out to churches and ministries, and really

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started the whole movement of a church beyond its walls on

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Sunday and basically able to serve your congregation and get

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them the information they need to be able to become more

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involved and volunteer and do Bible study and anything you

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know, you wanted to share your interests with them. And so life

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was good. Playing basketball in Michigan. Found my crew played

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four and four full full court, basically on short court. And it

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was awesome. And unfortunately, at age 50, where you're supposed

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to go into a colonoscopy, the screening age is now 45 so time

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out, go get screened. Don't get cancer. It's horrible. It's just

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a terrible existence. But if you get screened and deal with your

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health checkups, so for cancer, it's, you know, cologuard poop

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in a cup, or the gold standard of colonoscopy, and that age is

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45 unless you have symptoms like blood in your stool,

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constipation. It's confused with Crohn's disease and irritable

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bowel disease. Sometimes it's hard to be diagnosed, but go get

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your colonoscopy. If you're 45 or if you have family history,

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you can actually eat it sooner, and so my daughter will be

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getting one sooner, and also get a mammogram and check your

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prostate and go to the dentist, a lot of that stuff we couldn't

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do during the pandemic. And now we need to get healthy and stay

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healthy, and that's what, really what you need to do. So I was

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diagnosed with stage three colon cancer right sided, and I had

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resections and tons of chemo, and unfortunately, a year later,

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I went metastatic. It spread outside of my colon to my liver,

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my stomach lining is called peritoneummentum, a bladder. And

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second time in my life, I was told to get my affairs in order.

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I had six months to live, and I didn't know if I was going to

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ever see my daughter graduate high school. She was 15 at the

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time, and I joined colon town, and I got to meet and talk to

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other cancer patients that had this crazy surgery called

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Cytoreductive Surgery, hyerthermic intraperitoneal

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chemotherapy. (CRSHIPEC) So basically, they cut me and took

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out all the cancer that they could see, and then poured hot

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chemo in my pelvic and abdomen to kill micro cell, and that

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saved my life. That's miracle number three. So it's absolutely

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incredible. So bringing things forward, I got five years of no

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evidence of disease, I was playing hoops, still on

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disability, but during the pandemic, I wrote shining

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brightly. Thank you David Crum and Frontage Publishing, and

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Read The Spirit magazine. I did it over zoom. I interviewed 158

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of the most influential, important people in my life, and

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I built a book that you can relate to. It's inspiring. It

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talks about families, and families don't get along. We

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laugh, cry and fight together, and trips we've taken together.

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And I talk about mentorship is true leadership. I think it's

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the lost art of leadership to be a mentor to someone else, or to

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allow yourself to be a mentee. And I talk about interfaith work

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of knowing the other, their cultures, their foods, their

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histories, and we're all different, but we're here to get

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along. We're not taught to hate. We could choose not to hate, and

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especially in chapter one, where my 100 year old grandmother said

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to choose kindness every day, choose giving every day, choose

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gratitude, choose joy and choose not to hate. These are simple

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principles that you can look in the mirror as a mantra and say

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every single day. So I'll take a break for a second, and I've got

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chemo running in IV right behind me, and I shave my head, for

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those that'll see it in the video portion. And I've got

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another huge challenge in front of me.

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I noticed a bruise on my forearm. I had played basketball

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that Sunday before. I'd hiked five miles that Monday and

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Tuesday, worked out, and I saw a bruise on my forehand, and it

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wasn't from basketball. I took a picture of it. I texted my

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oncologist, Dr rich Jackman, and he said, Come in, let's do some

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blood tests. Well, those blood tests revealed that I was pancit

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in anemia. So that means my white counts, my red hemoglobin

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and and my platelets were critically low. And that's not

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good, not a good sign. And we did a bone marrow biopsy, and on

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october 25 I was told for the third time in my. Life that I

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actually have acute myeloid leukemia. This is all chemo

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induced and resistant from all the chemotherapy, full body

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radiation that I had on my prior non Hodgkin's lymphoma, cancer

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and colon cancer, and my sister's bone marrow just

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stopped working, and my tank ran out of gas, the engine seized

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up, and I got a lot of wear and tear and mileage on this, on

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this, this old, 58 year old model. And so shocking news

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zipped me back in from five years into evidence to disease,

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back into the cancer world. And we tried a protocol of targeted

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therapy, pills and chemo, and I did a bone marrow biopsy last

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Monday, and we realized that this protocol wasn't working,

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not the news we wanted to hear. In fact, the Leukemia actually

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grew from 30% involvement to 40 a large cancer burden and very

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serious. So got the Thanksgiving weekend to watch football, spend

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time with my parents, my daughter flew in, and I'm back

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doing high dose chemotherapy for the next six days. It's going to

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knock me out. It's going to knock my immune system out, and

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hopefully, when I have my next bone marrow biopsy will show

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that the disease has been knocked down, because I'm

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entered into the National Bone marrow donor database. I'm going

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to need another donor like my twin sister is not eligible this

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time, preferably a male age 30 to I'm sorry, 20 to 3035, to

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donate their bone marrow after doing a cheek swab. And I'll

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have information on the show notes for GIFT of life.org and

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either match.org if you want to do that. Unfortunately, older

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people's bone marrow is ineffective as younger people's

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bone marrow. My sister was 24 when she gave me her bone

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marrow, and so I need to get into some type of remission and

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get a stem cell transplant. It's intense and but that's what I'm

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going to need to do to save my life. And I've got a lot of

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living to do my daughter Emily, who's in podcast 109 she said we

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got to get busy living, and that's what we have to do. And I

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want to I have goals. I want to walk her down the aisle someday.

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And I have goals about my podcast and my book and my

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speaking and my coaching and to helping others, and so I need to

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get healthy first. And so it's been a very intense time, and

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I'm going to have to put this podcast on hiatus. I need to

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focus on my health, and I'm sad because this brings me joy. So I

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choose to do this podcast weekly for the last almost two years,

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and it's joyful. I've met the coolest people ever, inspiring

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people that have gone through some really tough stuff to be

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able to come out the other side and use their lessons learned to

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help others. And we all need a little hope, H, O, P, E, that is

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the fuel that keeps most of us going, and so this is kind of

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where we're at. I love everybody that is sending me lots of

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healing, prayers and hugs. I have a huge worldwide network.

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It's by the 1000s that love energy is lifting me up. Please

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keep it coming. I've also one of the things that I learned having

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colon cancer, you know, at age 50, is that people say, What can

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I do for you? How can I help you? And you have to have an

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answer for that. And I do have an answer for that. And so on my

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GoFundMe page, which has raised $75,000 on LinkedIn and

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Instagram and Facebook. I tell people what they can do and make

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that choice to help me in my time of need and help my family

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in their in their time of need. And so the first thing is that

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you can go to gofundme.com and search Howard Brown. And the

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first co funding comes up is for colon cancer. Don't use that

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one. Use the one of the third cancer, for AML, acute myeloid

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leukemia. And people are just being very generous, because I

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plan on living and I plan on getting back up again, just like

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I preach. And I'm going to need those funds to get my life back

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on track and get started and build Humpty Dumpty for a third

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time, emotionally, physically, financially and in

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relationships. So go fund me. The first thing they can do, the

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second I ask people to send is healing, prayers and hugs, any

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which way you can, and I can't keep up and answer everybody's

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replies, but Facebook, LinkedIn, Instagram, direct messaging,

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texting, email, it's coming, and it's just overwhelming, and it's

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lovely. It's amazing. I just I'm so happy that people are

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thinking about me and taking the time to join. Shining brightly,

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movement and army to make the world a better place, and come

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to me in my time of need, it's incredibly humbling, it's

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incredibly inspiring. And keep it coming, for sure, the next

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thing I ask is for people too in their local area to donate

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blood, red cells and platelets. They're needed down for the

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hurricane. Just go in and to your hospital and they'll

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they'll take your blood. It doesn't take much time, and we

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need blood for not just me. I'm going through blood transfusions

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and platelet transfusions like crazy, because my immune system

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is not down so low. But you can give blood, and that's a

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beautiful way to shine brightly, and a beautiful way to act with

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just pure kindness. The next is to swab your cheek. So this is

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what I was talking about with a bone marrow donor registry. It's

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worldwide, and the ability to swap your cheek gets you

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entered. It doesn't mean you'll get matched, but getting matched

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used to be a one in 25,000 chance. It's now less, but we

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need people in the registry. This is a life saving gift that

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can really help cancer patients in need, and so that swab will

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put you in the database at GIFT of life.org, or Be The match.org

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and you may never get called, but you may, and then you have

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to consent. Then they'll take blood, and then they do it very

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differently. 35 years later, they actually really get your

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bone marrow all jacked up and super bone marrow. And then they

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actually take it like giving platelets. So they take out the

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stem cells, and they leave everything else, the platelets

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and other blood, in there. And it's over a course of, you know,

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three, four days, and then it is flown to the cancer stem cell

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transplant center, whatever it is in the world, there's no cost

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to you but, and it'll remain anonymous for a year in the US

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and two years internationally and again, choosing giving real

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simple choose to give your bone marrow if called and it's a

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blessing. Next, I ask people if they can do a random act of

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kindness, because kindness makes the world go around. Be kind to

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yourself and be kind to others, and that makes the world so much

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better, and that is truly shining brightly. Lastly, I ask

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people to hug their family and friends for no reason, for no

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reason, just go hug your family and friends. Just a great way to

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have joy and be kind. But what are you doing? Why are you

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hugging me? Hug you, because I love you, and that is truly

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shining brightly as an individual and as a movement. So

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I'm going to put this on hiatus. I hope to see you real soon.

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Special thanks to front edge publishing, my book publisher,

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read the spirit magazine where I blog, and I'll put that on

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hiatus now as well, for a little bit, also for amplify you

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amazing podcast production house that makes me look great, and

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finishes my podcast assets every week for almost the last two

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years. Also for one of my newer sponsors to speak and speak,

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inspire and prosper, share and love. And also, I want to shout

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out to Ali Horia from capes Avisa. And there's just so many

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people that have influenced me and made things better, and I've

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gotta go, just bear down, power through and I'll do that. We'll

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do that because life, fighting cancer, business, family, it's a

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team sport. Remember, I love you. Please pray for me, and

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we'll see. We'll see on the other side, keep effing going.

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It's all we can do every single day. Howard Brown, Mr. Shiny.

Howard Brown:

Brightly. Signing off for now. Love you.